Living with Autism: A Parent's Perspective

A Parent's look at Dealing with an Autistic Child

About this blog

Welcome to our blog. Here Michelle and I (Carl) will try over time to give you an idea of the struggles and the triumphs of raising an autistic child. He is lovable and happy most of the time but is basically nonverbal and nonsocial. He is getting better with time and a lot of effort on our part (and on his) and this journey we will try to explain as we go along

Repeatedly for years now we have been saying: When are we going to research environmental issues in relation to possible causes of Autism?

 

Now we here that a conference was set up and those researchers involved with any details on autism and the environment were not invited. Instead those invited were not even autism researchers at all but were involved in researching other diseases.

 

This is leading me to a central question. Are we as parents and stakeholders in our children’s health and welfare going to have to set up the research studies and trials ourselves.

 

This is not something that is to be taken lightly as any studies we do or commission will be guaranteed to be second guessed however with the right ethical researchers and a completely above board ethical team we could do the research if we could pull together the funds for the research ourselves.

 

This is something that we are going to have to look at sooner or later and given the history of those presently commissioning the various research paths we might as well prepare to do this sooner because history is showing us that we are the only ones who actually care about this form of research

 

In my personal opinion i believe that the research that we need to look at involves a direct question of is there any environmental trigger to autism and if so what is it? and research into the various “unproven treatments” to provide parents with factual information about the validity and successes or lack of successes that each of these treatments provide



0 comments:

Post a Comment

Subscribe

Enter your email address:

Delivered by FeedBurner

Monthly Donation
One Time Donation

Followers